Who Moves Me – Who Shakes Me?


11th April was World Parkinson’s Day and many of you kindly sent me news on this. Thank you.

Its good to know I’m not alone, but its interesting that people approach this B****** disease in different ways.

Here’s are the “Movers and Shakers”. A gang of Brits all in the public eye, all with Parkinson’s. They meet in a pub to share their experiences and help others through a podcast.

Their podcast has been going for over a year now and it’s, well it’s a mixture really. Some of it’s funny, some of it’s touching, a lot is stuff I recognise. Paxman is quite confrontational.

Take a look or a listen on the link below. See what you think.

Sir William, AKA Billy, Connolly

I’ve shared stuff about the great man before, you can see that here. His knighthood is for services to entertainment and charity, and thoroughly deserved. He’s a decade into his Parkinsons and had a serious fall last year. I understand that one, Parkinson’s buggers up your balance big time. He keeps inspiring me, we both have fantastic wives, live on the coast (his is the US coast) and share a love of fishing.

Photograph: Nick Doll in The Guardian

Michael J Fox

Here’s a guy who was incredibly famous as a film star, and is now probably the most famous person in the world with Parkinsons. He’s another inspiration, all action, out there using his profile to raise MILLIONS for research. What he has done with the Michael J Fox Foundation is extraordinary. Still no cure… but a heck of a lot closer.

Kenya Marks WPD

This disease is universal, here in Kenya too. I’m grateful to everyone who joined the World Parkinson’s Day march in Nairobi on 11th April. You can see it below.

Here’s my view on what makes a difference to living to 100 with Parkinsons:

  1. The Patient – What can I do? For me its about mindset, stay positive, look for solutions, set physical and mental objectives and work on them. Easier said than done sometimes, I do get depressed, but I try to shake it off and pick up the fight again.
  2. The Medicine – Parkinson’s treatments continue to improve, as do non-prescription neutraceuticals to stave off neurological decline. Staying up to date, knowing what works, managing dosage and frequency, taking up new technology or medication, helps slow disease progression and offset the worst of the symptoms.
  3. Control the Controllables – Simple stuff like sleep, exercise, social contact and staying busy. Do what you love – I go fishing! Plus I still conduct business on a near daily basis, this keeps my mind sharp and motivates me to push on to new goals before I reach 100 years old.