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An extraordinary honour
One of the benefits of age is the span of friendships. These are treasures excluded from the young. Shared memories over decades, the things we did in a different age!!!! Last Friday I was moved to tears by the completely unexpected honour of having a museum named after me. “Nondies” Those who know me, know…
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Back to the Future
This Friday’s Update is all about… I saw Michael J Fox on this fairly old CNN interview recently. It really got to me… He seemed much worse off than me with his tremors and shakes and yet he epitomised optimism in the face of adversity. For those who don’t know, he was diagnosed with early-onset…
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Bleddy ‘ ansome
I confuse and amuse my non Cornish friends when the odd word from my youth pops out. I have stayed connected with Cornwall all my life and one of my proudest moments was being initiated as a Cornish Bard. The Bards of Gorsedh Kernow The bards of Gorsedh Kernow, swear allegiance to Cornwall as a…
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When you say nothing at all….
The dreaded P has affected my speech and this performance made be howl with laughter. Who cares if you don’t speak the same as everyone else – they just need to pay more attention 😂 😂 😂 Lesson 1 : So you’re different… So BE different. You speak quietly, attract attention a different way. In…
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What did The Queen teach me?
Last week Her Majesty Queen Elizabeth II was laid to rest, having died at the age of 96. I have been reflecting on the lessons she taught in living her long and extraordinarily busy and successful life. Her activity levels were extraordinary… !!! Physical activity … … like hiking in the Scottish hills, doing public…
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Thank you
I am truly grateful to everyone who has followed me and contacted me privately to say how much my story means to them and their family. You have spoken of how much life and fun I am having, despite age and “the big P” and that you have got strength and hope from that. That…
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Find me on Twitter
I’m of the generation where we used pens, paper, envelopes, stamps and postboxes. I’m pretty tech-savvy, a “silver surfer”, but social media is a whole new game. I have a new Twitter account. I’ll start to share my updates on these and be pleased to “meet” you there.
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Bittersweet moments
I’ve always been “Pops” to my kids, well except when I’m in the dog house, then there’s a choice selection of epithets 😂 How does family deal with the diagnosis, development and difficulties of disease, be it Parkinsons or anything degenerative? Mine are enormously supportive, but also sad, fearful and occasionally suffocating* As time rolled…
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Live Long & Prosper
I didn’t start making an effort until many years into my Parkinsons, I was in denial. When I did, I set about changing three things: D – DIET E – ENTERTAINMENT W – WORK My DEW points. I decided that if I was going to Live to be 100 Years Old – with Parkinsons, and…
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Hello and Welcome
First Up… This is my first post and I’ll leave it here so new followers know where it all began. Fighting my Parkinsons, avoiding Dementia, Living to be 100 Years Old!! Regular followers… Get on down to the later posts and catch up with me there. Each of these posts will give a snapshot of…